RESEARCH STUDIES

The purpose of this CareNet study is to learn about the experiences of diverse family caregivers of older adults with memory problems, like dementia. The study requires a one-time interview that should take about 60 minutes total. The interview includes questions about your point of view and experience of caregiving for your loved one. If you are interested in this study, we will send you an online pre-screening survey link to determine if you are qualified for the study. Please contact Dr. Mi-Kyung Song at mikyung.song@emory.edu or call 404.727.3134 for any questions or your interest in completing an online pre-screening survey link.

Researchers at University of Oregon are seeking participants for an online survey exploring the needs of family caregivers. To qualify, you must be an unpaid caregiver for afamily (or chosen family) member with dementia, living with the care recipient, caregiving for 2+ months, and 18+ years old.

This study is investigating the role of chronic stressors on African American and Black women and their influence on early aging and heart disease risk.

This study will include transgender people in the Southern United States who have/have had a serious medical illness requiring hospitalization, and/or their caregivers. The goal of this study is to better understand how transgender people and their loved ones or caregivers would like to be treated by healthcare providers. It is not required that the patient and caregiver are together in a relationship or that the caregiver is transgender.

We want to learn from you so that we can develop a program that will teach healthcare providers to treat transgender people with serious medical illnesses and their caregivers with respect, and in the way that the community desires. We are guided by an Advisory Group of members of the transgender community. And we are now recruiting participants to participate in a one-time, 90-minute interview. Call us at (205)-977-8948 or (205)-975-9943 or email us at trustlab@uabmc.edu.

This two year observational study, conducted by Dr. Whitney Wharton, aims to determine the relationship between blood and brain sex hormones and Alzheimer's disease risk factors during middle age.

This study aims to learn more about the social and caregiving support networks of LGBTQIA+ people who provide care for loved ones living with Alzheimer’s Disease or other forms of dementia. Further understanding these networks will aid development of programs to help caregivers and improve patient outcomes. This study involves completing a guided survey on Zoom with a member of the research team. This interview would last less than one hour. Participation in this research study is voluntary. If you decide participate in this research, you will receive an e-gift card (Amazon.com) upon completing your interview. Contact us at (812) 856-1710 or at HEBLab@iu.edu if you have any questions or if you are interested in joining this study.

We are performing research to study whether a new, personalized legal and financial planning platform for family caregivers of people living with Alzheimer’s disease and related dementias is useful. We are currently looking for family caregivers who identify as sexual and gender minorities (LGBTQ+) to participate in this research study. For this research, you will be asked to use CareVirtue Planner, which is a new web-based financial and legal planning tool for caregivers, for 3 months. While using this tool, you will be asked to answer questions about your experiences and the relevance of materials to meet your needs. If you agree to participate, you will be compensated up to $150 and will be able to use CareVirtue Planner cost-free for one year. Contact us at (812) 856- 1710 or at werneriu@indiana.edu if you have any questions or if you are interested in joining this study.

This two-year observational study looks to determine the relationship between cardiovascular disease, cognition, and Alzheimer's disease risk factors during middle age.

Parkinson’s Research with Inclusion, Diversity, and Equity (“PRIDE”) focuses on understanding the health and health care needs of the LGBTQIA+ and non-LGBTQIA+ communities living with Parkinson’s disease. We are asking people living with Parkinson’s and those who help with their care to do a 45-minute survey over the phone. We value your time, so we are offering eligible participants a $25 electronic Visa card for completing the survey. Give us a call at 1-888-709-7689.

The main purpose of ACE is to determine if taking Equol, a plant-based supplement, could slow the progression of stiffening of the arteries, small blood vessel disease in the brain and memory decline.

This observational study looks to determine the relationship between cardiovascular disease, cognition, immune function, and Alzheimer's disease risk factors during middle age.

Providing care for a family member with Alzheimer’s disease and related dementias (ADRD, aka, “dementia”) is both rewarding and risky. Care Partners exposed to chronic stress, often over years, are susceptible to physical and psychological ailments. Tele-STELLA was designed to address the specific needs of families living with moderate to severe dementia. Tele-STELLA is a multi-component, tailored intervention that begins with one-to-one sessions with each Care Partner and Guide, then links Care Partners to each other in a meaningful way to sustain support post intervention. Tele-STELLA is designed for families living in the later stages of dementia, where behavioral symptoms are more prominent and distressing.